I want to begin by saying thanks to so many who have been on this ‘journey’ with us for years now. Going through a series of conflicting reports is our kind of normal. We have been searching for answers to Ethan’s migraines and intestinal issues for the past couple of years. Ethan went to a specialist last month. He was tested for many things. We were surprised to learn this past week that not only are there intestinal issues but now problems with his liver. We were told very serious problems with his liver. Shock, fear, disbelief – these have weighed heavy on us as we waited for today’s appointment. Freddie left the house this morning, a nervous wreck. I left with Ethan, almost numb with fear. I prayed all the way to the doctor. Many of you prayed with us. I prayed specifically for God to let the results be wrong. For us to walk out of there with no additional issues for Ethan. We know we have a lot to work through with his intestines, but please not his liver too. Please no more.

I am beyond grateful for my dear friend, Deb, that went with us. She is an RN and one of the smartest ladies I know. She knows how and what to ask and I knew I would be useless. After hours of waiting and reviewing- we walked out with much better news than expected. Ethan’s liver enzymes are low. However, they are not horribly low as we had originally been told. They are lower than normal, but there are plenty of things we can do to help support his liver and his intestines at the same time. We will do what we know to do and go back for new tests to keep an eye on it. Is he 100%? No. But we have lots of room for improvement. We went in scared but came out hopeful. As we walked out, I thought- “Did that really just happen?” He is ok? After what we were told 6 days ago, is he really ok?

I prayed for God to let them be wrong. They were. We know we have to watch this. We know that we still have other tummy issues to work on. But today….Today was a Victory. My Mom always had a way of looking for the good even in the toughest situations. I can almost hear her today….”No one is dying today. Chin up. Keep fighting for him.”

We will continue to fight and believe. God didn’t bring our family this far to drop us.

God is good, all the time.

Thanks again for your love and support~
Lisa